Osteogenesis Imperfecta Clinic Staff
- Jay R. Shapiro, MD
- shapiroj@kennedykrieger.org
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- Director of the Osteogenesis Imperfecta Program at Kennedy Krieger Institute
- Professor in the Department of Physical Medicine and Rehabilitation at Johns Hopkins University
Dr. Shapiro has dedicated more than 30 years to researching, caring for, and treating children and adults with OI. His expertise also covers OI infants and OI pregnancies. Dr. Shapiro works closely with physicians at Johns Hopkins Hospital as well as local physicians to coordinate each OI patient’s care and long-term well-being.
Contact Information
- Jay R. Shapiro, OI Program Director
- Kennedy Krieger Institute
- 707 North Broadway, Baltimore MD 21205
- Telephone: 443-923-2703
- Emily L. Germain-Lee, MD, MD
- GermainLee@kennedykrieger.org
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- Associate Director of the Bone and Osteogenesis Imperfecta Program at Kennedy Krieger Institute
- Director of Bone Research and Albright Center at the Kennedy Krieger Institute
- Associate Professor in the Division of Pediatric Endocrinology at the Johns Hopkins University School of Medicine
Dr. Germain-Lee has been a pediatric endocrinologist for 20 years with a specialty in the diagnosis and treatment of bone disorders including OI. She is also the Director of Bone Research and the Albright Center at Kennedy Krieger with research interests in OI, Albright hereditary osteodystrophy, and other bone conditions. Dr. Germain-Lee developed and directed the Johns Hopkins Pediatric Bone Center and is the Principal Endocrinologist for the Greenberg Center for Skeletal Dysplasias in the Institute of Genetic Medicine at Johns Hopkins.
Contact Information
- Emily L. Germain-Lee, MD, Bone and OI Department Associate Director and
Director of Bone Research Kennedy Krieger Institute - Kennedy Krieger Institute
- 707 North Broadway, Baltimore MD 21205
- Telephone: 443-923-2703
- Emily L. Germain-Lee, MD, Bone and OI Department Associate Director and
- Paul D. Sponseller, MD
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- Co-founder of the Osteogenesis Imperfecta Clinic at Kennedy Krieger Institute
- Chief of Orthopedic Surgery, Johns Hopkins Hospital
Dr. Sponseller is the co-founder of the OI Clinic at Kennedy Krieger Institute, where he holds active staff tenure. He is also the Chief of Pediatric Orthopedics at Johns Hopkins Hospital, the Vice Chairman of Orthopedic Surgery at Johns Hopkins Hospital and a Professor in Orthopedic Surgery at Johns Hopkins University.
- Arabella I. Leet, MD
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- Orthopedic Surgeon
- Director of the Orthopedic Center for Cerebral Palsy at Kennedy Krieger Institute
Dr. Leet is a pediatric orthopedic surgeon as well as a clinical scientist with a research interest in OI. She did her residency in Orthopedic Surgery at the University of Minnesota and a fellowship in Pediatric Orthopedic Surgery at the Alfred I DuPont Institute in Delaware and the Children’s Hospital of Los Angeles. At Kennedy Krieger she sees patients with OI and is also the director of the orthopedic center for cerebral palsy.
- Delores A. Moore
- MooreDe@kennedykrieger.org
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- Manager
Delores Moore has an extensive and diverse management background which includes 25+ years at Kennedy Krieger Institute providing program and grants management support for three medical programs: the OI program, Orthopaedics and Pediatric Rehabilitation.
Contact Information
- Delores A. Moore, Manager
- Kennedy Krieger Institute
- 707 North Broadway, Baltimore MD 21205
- Telephone: 443-923-9440
- LaVerne Madden, MSN, RN
- Madden@kennedykrieger.org
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- Senior Staff Nurse/Nurse Clinician
LaVerne Madden has worked over 27 years at the Kennedy Krieger Institute providing and coordinating nursing care and medical services for children and adults with disabilities.
Contact Information
- LaVerne Madden, MSN, RN, Senior Staff Nurse/Nurse Clinician
- Kennedy Krieger Institute
- 707 North Broadway, Baltimore MD 21205
- Telephone: 443-923-9161
- Christina Severson, RN
- Severson@kennedykrieger.org
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- Nurse Clinician
Christina has been a nurse for 19 years. She has worked with children and adults with disabilities for over 14 years.
Contact Information
- Christina Severson, RN, Nurse Clinician
- Kennedy Krieger Institute
- 707 North Broadway, Baltimore MD 21205
- Telephone: 443-923-2704
- Pamela Melvin, RN
- melvin@kennedykrieger.org
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- Osteogenesis Imperfecta Research Nurse
Pam has more than 20 years of experience as a registered nurse, 18 of which have been devoted to caring for patients at Kennedy Krieger Institute. She returns to spearhead the Forteo study and the Nutrition study and to help with the Linked Clinical Research Centers.
Contact Information
- Pamela Melvin, Research Nurse
- Kennedy Krieger Institute
- 707 North Broadway, Baltimore MD 21205
- Telephone: 443-923-2707
- Caden Chang, MS
- ChangF@kennedykrieger.org
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- OI Registry Manager
Caden manages all aspects of the OI Registry including member registration, promotion, investigator utilization, and internal review board (IRB) process. She also handles some of Dr. Shapiro’s OI Clinic research projects.
Contact Information
- Caden Chang, OI Registry Manager
- Kennedy Krieger Institute
- 707 North Broadway, Baltimore MD 21205
- Telephone: 443-923-9180
- Dionna Hicks
- oiclinic@kennedykrieger.org
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- Administrative Coordinator
Dionna Hicks has seen the OI Clinic grow through the past 6 years as the primary point of contact for the OI Clinic.
Contact Information
- Dionna Hicks, Administrative Coordinator
- Kennedy Krieger Institute
- 707 North Broadway, Baltimore MD 21205
- Telephone: 443-923-2703
- Contact Us
- The Osteogenesis Imperfecta Clinic
- 801 North Broadway
- Baltimore, MD 21205
- 410-923-9400