Osteogenesis Imperfecta Clinic Staff

• Director of the Osteogenesis Imperfecta Clinic at Kennedy Krieger Institute
• Professor in the Department of Physical Medicine and Rehabilitation at Johns Hopkins University

Dr. Shapiro has dedicated more than 30 years to researching, caring for, and treating children and adults with OI. His expertise also covers OI infants and OI pregnancies. Dr. Shapiro works closely with physicians at Johns Hopkins Hospital as well as local physicians to coordinate each OI patient’s care and long-term well-being.

Contact Information

• Jay R. Shapiro, OI Program Director
• Kennedy Krieger Institute
• 801 North Broadway, Baltimore MD 21205
• Telephone: 443-923-2703

• Associate Director of the Osteogenesis Imperfecta Clinic at Kennedy Krieger Institute
• Director of Bone Research and Albright Clinic at the Kennedy Krieger Institute
• Associate Professor in the Division of Pediatric Endocrinology at the Johns Hopkins University School of Medicine

Dr. Germain-Lee has been a pediatric endocrinologist for 20 years with a specialty in the diagnosis and treatment of bone disorders including OI. She is also the Director of Bone Research and the Albright Clinic at Kennedy Krieger with research interests in OI, Albright hereditary osteodystrophy, and other bone conditions. Dr. Germain-Lee developed and directed the Johns Hopkins Pediatric Bone Center and is the Principal Endocrinologist for the Greenberg Center for Skeletal Dysplasias in the Institute of Genetic Medicine at Johns Hopkins.

Contact Information

• Emily L. Germain-Lee, MD, Bone and OI Clinic Associate Director and
  Director of Bone Research Kennedy Krieger Institute
• Kennedy Krieger Institute
• 801 North Broadway, Baltimore MD 21205
• Telephone: 443-923-2703

• Co-founder of the Osteogenesis Imperfecta Clinic at Kennedy Krieger Institute
• Chief of Orthopedic Surgery, Johns Hopkins Hospital

Dr. Sponseller is the co-founder of the OI Clinic at Kennedy Krieger Institute, where he holds active staff tenure. He is also the Chief of Pediatric Orthopedics at Johns Hopkins Hospital, the Vice Chairman of Orthopedic Surgery at Johns Hopkins Hospital and a Professor in Orthopedic Surgery at Johns Hopkins University.

• Orthopedic Surgeon
• Director of the Orthopedic Center for Cerebral Palsy at Kennedy Krieger Institute

Dr. Leet is a pediatric orthopedic surgeon as well as a clinical scientist with a research interest in OI. She did her residency in Orthopedic Surgery at the University of Minnesota and a fellowship in Pediatric Orthopedic Surgery at the Alfred I DuPont Institute in Delaware and the Children’s Hospital of Los Angeles. At Kennedy Krieger she sees patients with OI and is also the director of the orthopedic center for cerebral palsy.

• Manager, Program Operations

Melanie has over 10 years experience and provides financial and administrative oversight to the OI Clinic/Department.

Contact Information

• Melanie Branagan, Manager
• Kennedy Krieger Institute
• 707 North Broadway, Baltimore MD 21205
• Telephone: 443-923-9519

• Senior Staff Nurse/Nurse Clinician

LaVerne Madden has worked over 34 years as a registered nurse. For 29 years, she has been working at the Kennedy Krieger Institute providing and coordinating nursing care and medical services for children and adults with disabilities.

Contact Information

• LaVerne Madden, MSN, RN, Senior Staff Nurse/Nurse Clinician
• Kennedy Krieger Institute
• 801 North Broadway, Baltimore MD 21205
• Telephone: 443-923-9161

• Nurse Clinician

Christina has been a nurse since 1991 working with children and adults with disorders of the brain, spinal cord, and musculoskeletal system.

Contact Information

• Christina Severson, RN, Nurse Clinician
• Kennedy Krieger Institute
• 801 North Broadway, Baltimore MD 21205
• Telephone: 443-923-2704

• Osteogenesis Imperfecta Research Nurse

Pam has more than 25 years experience as a registered nurse, 20 of which have been devoted to caring for patients at Kennedy Krieger Institute in various programs. She joins the OI Department to spearhead the coordination of OI research protocols here at the Institute.

Contact Information

• Pamela Melvin, Research Nurse
• Kennedy Krieger Institute
• 801 North Broadway, Baltimore MD 21205
• Telephone: 443-923-2707

• Densitometry Technologist

Michael Allen has worked at Kennedy Krieger Institute for over 28 years providing mursing care for children and adults with disabilities. He joined the OI Department in May 2010 as a densitometry technologist.

Contact Information

• Michael W. Allen, Densitometry Technologist
• Kennedy Krieger Institute
• 801 North Broadway, Baltimore MD 21205
• Telephone: 443-923-2703

• OI Registry Manager

Caden manages all aspects of the OI Registry including member registration, promotion, investigator utilization, and internal review board (IRB) process. She also handles some of Dr. Shapiro’s OI Clinic research projects.

Contact Information

• Caden Brennen, OI Registry Manager
• Kennedy Krieger Institute
• 801 North Broadway, Baltimore MD 21205
• Telephone: 443-923-9180

• Research Assistant

Julie Skalamera assists Dr. Emily Germain-Lee with her clinical research, focusing primarily on Albright hereditary osteodystrophy studies.

Contact Information

• Julie Skalamera, Research Assistant
• Kennedy Krieger Institute
• 801 North Broadway, Baltimore MD 21205
• Telephone: 443-923-9328

• Clinical Service Coordinator III

Since 2002, Dionna Hicks has seen the OI Clinic grow as its primary point of contact.

Contact Information

• Dionna Hicks, Clinical Service Coordinator III
• Kennedy Krieger Institute
• 801 North Broadway, Baltimore MD 21205
• Telephone: 443-923-2703