In the US alone, an estimated 50,000 individuals suffer from osteogenesis imperfecta (OI). And yet, many people don't know the genetically based skeletal disorder exists. In fact, parents of children with OI, unable to explain their children's numerous fractures, are often accused of child abuse. With your support, we can continue to educate the public about OI, provide the most cutting-edge treatment available, and prepare to engage patients in new treatments as they are discovered. KKI Looks to a Brighter Future for Patients with OI A lack of awareness about OI pervades the public and even medical sectors and, in turn, often prevents early diagnosis and treatment. Kennedy Krieger Institute (KKI) is working hard to change that. KKI’s ambitious list of OI initiatives will require generous support from the community. In return, KKI will offer a nationally renowned resource for patients with OI, as well as research findings—keys to enhancing the quality of life for individuals with this troubling disorder. KKI’s OI goals:
- Continue to provide educational materials for families and professionals on latest OI treatment and research
- Analyze results of scoliosis fusion on quality of life
- Assess factors affecting quality of life
- Conduct clinical drug trials
- Evaluate role of rodding in adults
- Study the outcome of joint replacement
- Purchase necessary equipment to further research efforts
- Develop better way to evaluate bone density
oiclinic@kennedykrieger.org © 2004 Kennedy Krieger Institute Privacy Policy
Referral Information: For more information or to make an appointment at the Osteogenesis Imperfecta Clinic at Kennedy Krieger Institute, call toll free at 1-888-554-2080 or locally at 410-923-9400.