New Questionnaire Has Been Added to the OI Registry
05.17.2011 -- Based on the professionals' suggestions, five new questionnaires have been added to help us better understand OI:
- Gall Stone: A new checkbox on this topic has been added under the medical characteristics section.
- Cholesterol/Lipid Disorder: A new checkbox on this topic has been added under the medical characteristics section.
- Eye-Related Questions: A new section on this topic has been added.
- Skin-Related Questions: A new section on this topic has been added.
- Art: A new checkbox on this topic has been added under the educational and employment section.
If you are already a member, please log into your account to update your information. If you have not yet joined, please go to: www.osteogenesisimperfecta.org/oir to join to the OI Registry.
- Contact Us
- The Osteogenesis Imperfecta Clinic
- 801 North Broadway
- Baltimore, MD 21205
- 410-923-9400

